Introducing the
West
Berkshire Neurological
Alliance
Representing all West Berkshire people with a
neurological condition.
Honorary President
Lady Anne Hallifax
Patrons
Baroness
Susan Greenfield CBE
Dr Nigel Hyman MD FRCP
Penny Lilley MCSP SRP
Professor Pam Smith PhD BNurs RGN
Supported
by
The
Ammco Trust
Berkshire
Community Foundation
Berkshire
Masonic Charity
The
Colefax Charitable Trust
The
Eling Trust
The
Englefield Charitable Trust
Greenham
Common Trust
Laing's
Charitable Trust
Millennium
Festival Awards for All
Newbury
AJS and Matchless Owners Club
Newbury
Town Council
The
Sobell Foundation
Thatcham
Town Council
Vodafone
Group Charitable Trust
West
Berkshire Council
Executive Committee
|
Chairman |
David Roberts |
|
Vice Chairman |
Joyce Parker |
|
Treasurer |
Patrick McGrath |
|
Secretary |
John Holt |
|
Executive |
Bob Cray, Mollie Davison, Chreanne Montgomery-Smith,
Gill Hall, Hilary Hinchliffe |
West
Berkshire Neurological
Alliance
is a Registered Charity no. 1081021
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Membership
embraces the following
medical
conditions and groups
Alzheimers
Society, West Berkshire Branch
Ataxia
SCOPE, Southern Community Team, representing Cerebral
Palsy
Charcot-Marie-Tooth Disease
Dystonia Society,
Oxford Branch
Epilepsy
Headway Thames Valley (Head
Injuries)
Huntington's Disease
Association, Reading Branch
West Berkshire Mencap, representing Learning
Difficulties
Motor Neurone Disease
Association, Reading and West Berkshire Branch
Berkshire Multiple Sclerosis
Therapy Centre
Multiple
Sclerosis Society, Newbury and District Branch
Muscular Dystrophy
Myalgic Encephalomyelitis (CFS)
Myasthenia Gravis
Association, Berkshire Branch
Neuralgic Amyotrophy
Neuro-oncology
Parkinsons Disease
Society, Newbury and District Branch
British Polio
Fellowship, Berkshire Branch
Spinal injuries
Stroke Care for
Newbury and West Berkshire
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Contact Information
Membership is open
to non-profit making organisations in West Berkshire which represent
people with a neurological condition, or which are specifically interested
in promoting the care of such people. It is also open to individuals who
have a neurological condition for which there is no support group, or who
have a specific interest in promoting the care of such people. For details
contact the Secretary.
Membership fees for two years are £15 for
groups and £5 for
individuals
For further information, send an email to the
chairman: davideroberts@wbna.org.uk
or write to the secretary: John Holt, 2 Clayhill
Crescent, Newbury, Berkshire, RG14 2NP
or telephone the secretary: 01635 33582
or fax the secretary: 01635 569177
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What are our Joint
Aims?
We are an association of people and voluntary organisations
with an interest in people with a neurological condition, based in
and around West Berkshire, working together in pursuit of our aims
and objectives which are:
to
represent all people in West Berkshire with a neurological
condition
to
work together to ensure that the local provision of health and
related services includes fully funded neuro-rehabilitation facilities and
resources appropriate to and serving the needs of all
to
promote the vision that service is best delivered through a
multi-disciplinary team, to ensure an integrated programme of
neuro-rehabilitation, from post-acute through in-patient, out-patient and
peripatetic services, and to encourage the development of the neurological
peripatetic specialist nurse role
to
ensure that as much treatment as desirable
can be made available in the patients home
to
encourage the NHS and Social Services authorities to merge
their budgets and administration systems in order to minimise delays in
the effective provision of services
to
press the authorities to provide all appropriate care free of
charge to service users
to
ensure that the treatment which is made available to any one
patient is equally available to all other patients with the same need, regardless of administrative boundaries, underlying
medical conditions, age, sex, race or other factors
to
integrate input from the voluntary and professional sectors,
to maximise the combined benefits of partnership
to
improve the availability of information to people in West
Berkshire
to
encourage the development of a support service for those
individuals with a neurological condition where there is no specific
voluntary group to which such individuals can turn
to
raise funds, sufficiently to provide facilities or services for
people with a neurological condition, where the authorities can demonstrate
they are unable to make provision in the foreseeable future
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What are the Issues?
the low priority given to this large group of people and the
lottery of care which exists
the need for accepted standards of care
fragmented services and
lack of co-ordination between hospital and community, health and social
care
gaps between perceived
need, professional assessment and service delivery
the need for ongoing,
regular monitoring and assessment, particularly in degenerative and
variable neurological conditions
limited understanding by
many health and social care professionals of the physical, psychological
and social impact of particular neurological conditions
ensuring that those
affected are involved in the management of their condition
the need to measure
outcome of service provision in terms of the effect on quality of life
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Document Archive
Annual Reports
Annual Report 2002
Newsletters
Newsletter 01 January 2000
Newsletter 02 April 2000
Newsletter 03 July 2000
Newsletter 04 November 2000
Newsletter 05 February 2001
Newsletter 06 May 2001
Newsletter 07 August 2001
Newsletter 08 November 2001
Newsletter 09 February 2002
Newsletter 11 August 2002
Newsletter 12 November 2002
Newsletter 13 February 2003
Minutes of Open Meetings
Open Meeting February 2002
Open Meeting March 2002
Open Meeting May 2002
Open Meeting July 2002
Open Meeting November 2002
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Legal Stuff
Disclaimer
West Berkshire Neurological Alliance (the Alliance) has taken every care to ensure the accuracy of the information in this Website. However no guarantee of the accuracy of the information can be given and no individual should rely upon it. The Alliance, including its Trustees, officers and agents, shall not be liable for any damage, loss or inconvenience, direct or indirect, arising from the use of the Website or from the use of any information found within it. The Alliance, including its Trustees, officers or agents, does not offer or provide medical advice. Readers should seek their own or professional advice before taking, or refraining from taking, any action based on any information contained on this Website. No liability can be accepted for any information found within any other Website or within any other source to which this Website refers or has links. Opinions, conclusions, allegations, inferences and other information which may be found within any Website or within any other information source does not have any endorsement from West Berkshire Neurological Alliance, its Trustees, officers and agents.
Copyright
The material contained within these Website pages, and any printed or other form of it, is subject to international copyright laws and it is the responsibility of Website users to be familiar with copyright law and to comply with it. No part of the material found within this Website may be reproduced or transmitted in any form or by any means without prior written permission of West Berkshire Neurological Alliance (the Alliance). The Alliance grants individuals the right to use the material by downloading, storing and making single copies only, for private use or research purposes only. None of the above grants any person or organisation the right to publish the material in any form without prior written permission of the Alliance.
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