West Berkshire Neurological Alliance

<body LINK="#0000ff" VLINK="#800080" BGCOLOR="white"> <P> </P> <P ALIGN="CENTER"><font color="#0000FF"><b>Introducing the</b></font></P> <P ALIGN="CENTER"></P> <P ALIGN="CENTER"><FONT FACE="Mistral" SIZE="6" COLOR="#0000ff">West Berkshire </FONT><B><FONT FACE="Mistral" SIZE="7" COLOR="#00ff00">Neurological Alliance</FONT></B></P> <P ALIGN="CENTER">Representing all West Berkshire people with a neurological condition. </P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="4" color="#0000FF">Honorary</FONT><FONT SIZE="4" COLOR="#00ff00"> President</FONT></B></P> <P ALIGN="CENTER">Lady Anne Hallifax</P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="4" color="#0000FF">Pat</FONT><FONT SIZE="4" COLOR="#00ff00">rons</FONT></B></P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Baroness Susan Greenfield CBE</P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Dr Nigel Hyman MD FRCP</P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Penny Lilley MCSP SRP</P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Professor Pam Smith PhD BNurs RGN</P> <P> </P> <P align="center"><b><font size="4" color="#0000FF">Supported</font><font size="4" color="#00FF00"> by</font></b></P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">The Ammco Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Berkshire Community Foundation</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Berkshire Masonic Charity</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">The Colefax Charitable Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">The Eling Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">The Englefield Charitable Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Greenham Common Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Laing's Charitable Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Millennium Festival Awards for All</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Newbury AJS and Matchless Owners Club</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Newbury Town Council</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">The Sobell Foundation</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Thatcham Town Council</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">Vodafone Group Charitable Trust</P> <P align="center" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0">West Berkshire Council</P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="4" color="#0000FF">Executive</FONT><FONT SIZE="4" COLOR="#00ff00"> Committee</FONT></B></P> <TABLE WIDTH="100%"> <TR> <TD WIDTH="406" ALIGN="RIGHT"></TD> <TD WIDTH="161" ALIGN="LEFT">Chairman</TD> <TD WIDTH="487">David Roberts</TD> </TR> <TR> <TD WIDTH="406" ALIGN="RIGHT" HEIGHT="20"></TD> <TD WIDTH="161" HEIGHT="20">Vice Chairman</TD> <TD WIDTH="487" HEIGHT="20">Joyce Parker</TD> </TR> <TR> <TD WIDTH="406" ALIGN="RIGHT"></TD> <TD WIDTH="161">Treasurer</TD> <TD WIDTH="487">Patrick McGrath</TD> </TR> <TR> <TD WIDTH="406" ALIGN="RIGHT"></TD> <TD WIDTH="161">Secretary</TD> <TD WIDTH="487">John Holt</TD> </TR> <TR> <TD WIDTH="406" ALIGN="RIGHT"></TD> <TD WIDTH="161">Executive</TD> <TD WIDTH="487">Bob Cray, Mollie Davison, Chreanne Montgomery-Smith, Gill Hall, Hilary Hinchliffe</TD> </TR> </TABLE> <P> </P> <P ALIGN="CENTER"><FONT FACE="Mistral" SIZE="4" COLOR="#0000ff">West Berkshire </FONT><B><FONT FACE="Mistral" SIZE="6" COLOR="#00ff00">Neurological Alliance</FONT></B>  </P> <P ALIGN="CENTER"> is a Registered Charity no. 1081021</P> <P ALIGN="CENTER">  </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P> </P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0"><B><FONT SIZE="5" COLOR="#00ff00">Membership embraces the following</FONT></B></P> <P ALIGN="CENTER" style="word-spacing: 0; line-height: 150%; margin-top: 0; margin-bottom: 0"><B><FONT SIZE="5" color="#0000FF">medical conditions</FONT><FONT SIZE="5" COLOR="#00ff00"> and groups</FONT></B></P> <P> </P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Alzheimers</FONT></B> Society, West Berkshire Branch</P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Ataxia</FONT></B> </P> <P ALIGN="CENTER">SCOPE, Southern Community Team, representing <b><font color="#0000FF">Cerebral Palsy</font></b></P> <P ALIGN="CENTER"><b><font color="#0000FF">Charcot-Marie-Tooth Disease</font></b></P> <P ALIGN="CENTER"><b><font color="#0000FF">Dystonia</font></b> Society, Oxford Branch</P> <P ALIGN="CENTER"> <B><FONT COLOR="#0000ff">Epilepsy</FONT></B> </P> <P ALIGN="CENTER">Headway Thames Valley (<b><font color="#0000FF">Head Injuries</font></b>)</P> <P ALIGN="CENTER"><b><font color="#0000FF">Huntington's Disease</font></b> Association, Reading Branch</P> <P ALIGN="CENTER">West Berkshire Mencap, representing <b><font color="#0000FF">Learning Difficulties</font></b></P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Motor Neurone Disease</FONT></B> Association, Reading and West Berkshire Branch</P> <P ALIGN="CENTER">Berkshire <b><font color="#0000FF">Multiple Sclerosis</font></b> Therapy Centre</P> <P ALIGN="CENTER"> <B><FONT COLOR="#0000ff">Multiple Sclerosis</FONT></B> Society, Newbury and District Branch</P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Muscular Dystrophy</FONT></B></P> <P ALIGN="CENTER"><b><font color="#0000ff">Myalgic Encephalomyelitis (CFS)</font></b></P> <P ALIGN="CENTER"><b><font color="#0000FF">Myasthenia Gravis</font></b> Association, Berkshire Branch</P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Neuralgic Amyotrophy</FONT></B></P> <P ALIGN="CENTER"><b><font color="#0000FF">Neuro-oncology</font></b></P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Parkinsons Disease</FONT></B> Society, Newbury and District Branch</P> <P ALIGN="CENTER">British <FONT COLOR="#0000ff"><B>Polio</B></FONT> Fellowship, Berkshire Branch</P> <P ALIGN="CENTER"><b><font color="#0000FF">Spinal injuries</font></b></P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Stroke</FONT></B> Care for Newbury and West Berkshire</P> <P> </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P> </P> <P ALIGN="CENTER"><b><font size="5" color="#0000FF">Contact Information</font></b></P> <P ALIGN="CENTER"><B><FONT COLOR="#0000ff">Membership</FONT></B> is open to non-profit making organisations in West Berkshire which represent people with a neurological condition, or which are specifically interested in promoting the care of such people. It is also open to individuals who have a neurological condition for which there is no support group, or who have a specific interest in promoting the care of such people. For details contact the Secretary.</P> <P ALIGN="CENTER">Membership fees for two years are £15 for <FONT COLOR="#0000ff"><B>groups</B></FONT> and £5 for<B> <FONT COLOR="#00ff00">individuals</FONT></B> </P> <P> </P> <P ALIGN="CENTER">For further information, <b>send an email</b> to the chairman: <font color="#FF0000"><a href="mailto:davideroberts@wbna.org.uk">davideroberts@wbna.org.uk</a></font></P> <P align="center">or <b>write</b> to the secretary: John Holt, 2 Clayhill Crescent, Newbury, Berkshire, RG14 2NP</P> <P align="center">or <b>telephone</b> the secretary: 01635 33582</P> <P align="center">or <b>fax</b> the secretary: 01635 569177</P> <P align="center"> </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="5" COLOR="#0000ff">What are our Joint Aims?</FONT></B></P> <P ALIGN="LEFT">We are an association of people and voluntary organisations with an interest in people with a neurological condition, based in and around West Berkshire, working together in pursuit of our aims and objectives which are:</P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to represent</FONT></B> all people in West Berkshire with a neurological condition</P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to work</FONT></B> together to ensure that the local provision of health and related services includes fully funded neuro-rehabilitation facilities and resources appropriate to and serving the needs of all </P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to promote</FONT></B> the vision that service is best delivered through a multi-disciplinary team, to ensure an integrated programme of neuro-rehabilitation, from post-acute through in-patient, out-patient and peripatetic services, and to encourage the development of the neurological peripatetic specialist nurse role</P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to ensure</FONT></B> that as much treatment as desirable can be made available in the patients home </P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to encourage</FONT></B> the NHS and Social Services authorities to merge their budgets and administration systems in order to minimise delays in the effective provision of services </P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to press</FONT></B> the authorities to provide all appropriate care free of charge to service users</P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to ensure</FONT></B> that the treatment which is made available to any one patient is equally available to all other patients with the same need, regardless of administrative boundaries, underlying medical conditions, age, sex, race or other factors </P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to integrate</FONT></B> input from the voluntary and professional sectors, to maximise the combined benefits of partnership</P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to improve</FONT></B> the availability of information to people in West Berkshire</P> <P ALIGN="LEFT"><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to encourage</FONT></B> the development of a support service for those individuals with a neurological condition where there is no specific voluntary group to which such individuals can turn </P> <P><IMG SRC="images/GreenBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"><B><FONT COLOR="#0000ff">  to raise</FONT></B> funds, sufficiently to provide facilities or services for people with a neurological condition, where the authorities can demonstrate they are unable to make provision in the foreseeable future</P> <P> </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="5" COLOR="#0000ff">What are the Issues?</FONT></B></P> <P><B><FONT COLOR="#00ff00"><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14">   the low priority</FONT></B> given to this large group of people and the lottery of care which exists</P> <P><B><FONT COLOR="#00ff00"><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14">   the need</FONT></B> for accepted standards of care</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  fragmented</FONT></B> services and lack of co-ordination between hospital and community, health and social care</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  gaps</FONT></B> between perceived need, professional assessment and service delivery</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  the need</FONT></B> for ongoing, regular monitoring and assessment, particularly in degenerative and variable neurological conditions</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  limited</FONT></B> understanding by many health and social care professionals of the physical, psychological and social impact of particular neurological conditions</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  ensuring</FONT></B> that those affected are involved in the management of their condition</P> <P><IMG SRC="images/BlueBullet.gif" ALT="*" BORDER="0" WIDTH="14" HEIGHT="14"> <B><FONT COLOR="#00ff00">  the need</FONT></B> to measure outcome of service provision in terms of the effect on quality of life</P> <P> </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P>  </P> <P ALIGN="CENTER"><B><FONT SIZE="5" COLOR="#0000ff">Document Archive</FONT></B></P> <P><b><font size="4">Annual Reports</font></b> </P> <blockquote> <P><a href="documents/NA_AR_2002.rtf">Annual Report 2002</a> </P> </blockquote> <P>  </P> <P><b><font size="4">Newsletters</font></b> </P> <blockquote> <P><a href="documents/NA_News_01_Jan00.rtf">Newsletter 01 January 2000</a> </P> <P><a href="documents/NA_News_02_Apr00.rtf">Newsletter 02 April 2000</a> </P> <P><a href="documents/NA_News_03_Jul00.rtf">Newsletter 03 July 2000</a> </P> <P><a href="documents/NA_News_04_Nov00.rtf">Newsletter 04 November 2000</a> </P> <P><a href="documents/NA_News_05_Feb01.rtf">Newsletter 05 February 2001</a> </P> <P><a href="documents/NA_News_06_May01.rtf">Newsletter 06 May 2001</a> </P> <P><a href="documents/NA_News_07_Aug01.rtf">Newsletter 07 August 2001</a> </P> <P><a href="documents/NA_News_08_Nov01.rtf">Newsletter 08 November 2001</a> </P> <P><a href="documents/NA_News_09_Feb02.rtf">Newsletter 09 February 2002</a> </P> <P><a href="documents/NA_News_11_Aug02.rtf">Newsletter 11 August 2002</a> </P> <P><a href="documents/NA_News_12_Nov02.rtf">Newsletter 12 November 2002</a> </P> <P><a href="documents/NA_News_13_Feb03.rtf">Newsletter 13 February 2003</a> </P> </blockquote> <P>  </P> <P><b><font size="4">Minutes of Open Meetings</font></b> </P> <blockquote> <P><a href="documents/NA_Open_01_Feb02.rtf">Open Meeting February 2002</a> </P> <P><a href="documents/NA_Open_02_Mar02.rtf">Open Meeting March 2002</a> </P> <P><a href="documents/NA_Open_03_May02.rtf">Open Meeting May 2002</a> </P> <P><a href="documents/NA_Open_04_Jul02.rtf">Open Meeting July 2002</a> </P> <P><a href="documents/NA_Open_05_Nov02.rtf">Open Meeting November 2002</a> </P> </blockquote> <P> </P> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> <P> </P> <P ALIGN="CENTER"><B><FONT SIZE="5" COLOR="#0000ff">Legal Stuff</FONT></B></P> <P><font color="#0000FF"><b>Disclaimer</b></font></P> <blockquote> <P>West Berkshire Neurological Alliance (the Alliance) has taken every care to ensure the accuracy of the information in this Website. However no guarantee of the accuracy of the information can be given and no individual should rely upon it. The Alliance, including its Trustees, officers and agents, shall not be liable for any damage, loss or inconvenience, direct or indirect, arising from the use of the Website or from the use of any information found within it. The Alliance, including its Trustees, officers or agents, does not offer or provide medical advice. Readers should seek their own or professional advice before taking, or refraining from taking, any action based on any information contained on this Website. No liability can be accepted for any information found within any other Website or within any other source to which this Website refers or has links. Opinions, conclusions, allegations, inferences and other information which may be found within any Website or within any other information source does not have any endorsement from West Berkshire Neurological Alliance, its Trustees, officers and agents. <br> </P> </blockquote> <P><b><font color="#0000FF">Copyright</font></b></P> <blockquote> <P>The material contained within these Website pages, and any printed or other form of it, is subject to international copyright laws and it is the responsibility of Website users to be familiar with copyright law and to comply with it. No part of the material found within this Website may be reproduced or transmitted in any form or by any means without prior written permission of West Berkshire Neurological Alliance (the Alliance). The Alliance grants individuals the right to use the material by downloading, storing and making single copies only, for private use or research purposes only. None of the above grants any person or organisation the right to publish the material in any form without prior written permission of the Alliance.</P> <P> </P> </blockquote> <P ALIGN="CENTER"><FONT COLOR="#0000ff">**********</FONT><FONT COLOR="#00ff00">**********</FONT> </P> </BODY>