What are the Issues?

 

*   the low priority given to this large group of people and the lottery of care which exists

*   the need for accepted standards of care

*   fragmented services and lack of co-ordination between hospital and community, health and social care

*   gaps between perceived need, professional assessment and service delivery

*   the need for ongoing, regular monitoring and assessment, particularly in degenerative and variable neurological conditions

*   limited understanding by many health and social care professionals of the physical, psychological and social impact of particular neurological conditions

*   ensuring that those affected are involved in the management of their condition

*   the need to measure outcome of service provision in terms of the effect on quality of life